Community Down Syndrome Resources
Like all things in life, being well-informed and prepared for the future is the key to living stress-free now. We feel it is more important than anything for ALL families, caregivers and supporters of the Down syndrome community to know of the abundance of resources available to them. These resources can drastically improve the quality of life of individuals with Down syndrome and their loved ones.
Note that these resources are affiliated with a variety of organizations from the Down syndrome community. We hope, through the sharing of these resources, the Down syndrome community can be properly prepared to live their best life possible!
Resource/Organization | Website | Other Information | Resource Author |
---|---|---|---|
Regression and Down Syndrome | ndss.org | NDSS | |
Adult Sibling Toolkit | ndsccenter.org | NDSC | |
DSC2U | dsc2u.org | DSC2U | |
Weight Management Recommendations for Youth With Down syndrome | mydsc.org | LUMIND | |
Addressing Inequalities for Black Families in The DS Community | mydsc.org | Lumind and BDSA | |
Down Syndrome Answers | cdss.ca | CDSS | |
Two Syndromes | advocatehealth.com | ADSC | |
Down Syndrome and Sleep Apnea | mydsc.org | Lumind | |
Reducing the risk of Getting Alzheimers | advocatehealth.com | ADSC | |
Alzheimers Disease Down Syndrome Practical Guidebook for Caregivers | ndss.org | Individuals with Down syndrome are commonly affected by Sleep Apnea and Alzheimer’s disease. | NDSS |
Adult Down Syndrome Clinic Resource Page | advocatehealth.com | ADSC | |
Down Country | upatdowncountry.com | ||
Down Syndrome - Autism Connection | ds-asd-connection.org | ||
Down Syndrome Achieves | dsachieves.org | ||
DSAIA | dsaia.org | ||
DS-Connect: National Institutes of Health | nih.gov | ||
Down Syndrome Diagnosis Network | dsdiagnosisnetwork.org | ||
DSRF | dsrf.org | ||
Family Network on Disabilities | fndusa.org | ||
Global Down Syndrome Foundation | globaldownsyndrome.org | ||
Hope Story | hopestory.org | ||
International Mosaic Down Syndrome Association | imdsa.org | ||
Lumind | lumindidsc.org | ||
Mann Method PT | mannmethodpt.com | ||
National Association for Down Syndrome | |||
Resource/Organization | Website | Other Information | Resource Author |