Changing the conversation: GiGi’s Playhouse educates and advocates 

Sometimes, the smallest interactions spark the most meaningful change. 

Last month, Fox News published a heartwarming article about the joys and challenges of raising a child with Down syndrome. The piece was uplifting and inspiring — exactly the kind of representation the Down syndrome community deserves. 

But there was a slight problem. The article’s headline used the phrase “Down syndrome son,” phrasing that doesn’t align with how many individuals with Down syndrome want to be represented. Like all medical conditions, individuals with Down syndrome are not defined solely by their condition. Because of this, we use people-first language (PFL) to emphasize the person, not their condition. That’s why “son with Down syndrome” is preferred over “Down syndrome son.” 

Lizz Maxwell, the Executive Director of our Cleveland Playhouse and a devoted advocate for the Down syndrome community saw the Fox News article and did what we do at GiGi’s Playhouse — Lizz started a conversation. 

Lizz reached out to the article’s author with a kind and constructive message. Lizz expressed her appreciation for the article but also shared the importance of using PFL. Within hours, the author responded, thanking Lizz for her message and explaining that she changed the headline, ensuring that the language was person-first and more inclusive of the Down syndrome community. 

This simple exchange perfectly exemplifies how GiGi’s Playhouse uses its voice to educate and empower. At GiGi’s, we recognize that nearly everyone means well. No one intends to offend or insult the Down syndrome community, but many people have not had significant exposure to Down syndrome. As a result, they may not always know how to talk about Down syndrome. 

But that’s where we enter the picture. In addition to providing FREE educational and therapeutic programs, our network of 61 Playhouses educates entire communities on Down syndrome; we’re there to start a dialogue and demystify Down syndrome. 

And since GiGi’s is a trusted name, when we talk, the world listens. 

“The name GiGi’s Playhouse has become a symbol of awareness, advocacy, and action over the years,” said Lizz Maxwell. When any of us reaches out—whether to a journalist, a senator, or a public figure—it carries the weight of this legacy and inspires response, especially when done in a positive light that promotes teamwork.” 

Lizz’s exchange with Fox News proves that advocacy isn’t always about grand gestures or legislation; sometimes, it’s about small, everyday actions that lead to change. Every email, every conversation, every interaction is an opportunity to educate. 

At GiGi’s, our entire network works daily to educate and advocate. Through compassionate and constructive dialogue, GiGi’s Playhouse will continue to change how the world views Down syndrome — one conversation at a time.