Community Down Syndrome Resources
Like all things in life, being well-informed and prepared for the future is the key to living stress-free now. We feel it is more important than anything for ALL families, caregivers and supporters of the Down syndrome community to know of the abundance of resources available to them. These resources can drastically improve the quality of life of individuals with Down syndrome and their loved ones.
Note that these resources are affiliated with a variety of organizations from the Down syndrome community. We hope, through the sharing of these resources, the Down syndrome community can be properly prepared to live their best life possible!
| Resource/Organization | Website | Other Information | Resource Author |
|---|---|---|---|
| Knowledge Is Now | knowledgeisnow.com | We provide high-quality, accessible live and recorded training for therapists, educators, health plan representatives, and other professionals who are dedicated to improving the lives of children within the healthcare system. | |
| Alzheimers Disease Down Syndrome Practical Guidebook for Caregivers | ndss.org | Individuals with Down syndrome are commonly affected by Sleep Apnea and Alzheimer’s disease. | NDSS |
| DSRF | dsrf.org | ||
| Down Syndrome Diagnosis Network | dsdiagnosisnetwork.org | ||
| Family Network on Disabilities | fndusa.org | ||
| Global Down Syndrome Foundation | globaldownsyndrome.org | ||
| Hope Story | hopestory.org | ||
| International Mosaic Down Syndrome Association | imdsa.org | ||
| Lumind | lumindidsc.org | ||
| Mann Method PT | mannmethodpt.com | ||
| National Association for Down Syndrome | |||
| National Down Syndrome Congress | ndsccenter.org | ||
| NDSS | ndss.org | ||
| Raising Robust Readers | raisingrobustreaders.com | ||
| Ruby's Rainbow | rubysrainbow.org | ||
| The Lucky Few Foundation | theluckyfewfoundation.org | ||
| Upside Downs | upside-downs.org | ||
| Regression and Down Syndrome | ndss.org | NDSS | |
| DS-Connect: National Institutes of Health | nih.gov | ||
| DSAIA | dsaia.org | ||
| Down Syndrome Achieves | dsachieves.org | ||
| Down Syndrome - Autism Connection | ds-asd-connection.org | ||
| Down Country | upatdowncountry.com | ||
| Adult Down Syndrome Clinic Resource Page | advocatehealth.com | ADSC | |
| Reducing the risk of Getting Alzheimers | advocatehealth.com | ADSC | |
| Resource/Organization | Website | Other Information | Resource Author |