
Community Down Syndrome Resources
Like all things in life, being well-informed and prepared for the future is the key to living stress-free now. We feel it is more important than anything for ALL families, caregivers and supporters of the Down syndrome community to know of the abundance of resources available to them. These resources can drastically improve the quality of life of individuals with Down syndrome and their loved ones.
Note that these resources are affiliated with a variety of organizations from the Down syndrome community. We hope, through the sharing of these resources, the Down syndrome community can be properly prepared to live their best life possible!
Resource/Organization | Website | Other Information | Resource Author |
---|---|---|---|
National Association for Down Syndrome | |||
Adult Down Syndrome Clinic Resource Page | advocatehealth.com | ADSC | |
Reducing the risk of Getting Alzheimers | advocatehealth.com | ADSC | |
Two Syndromes | advocatehealth.com | ADSC | |
Down Syndrome Answers | cdss.ca | CDSS | |
Down Syndrome - Autism Connection | ds-asd-connection.org | ||
Down Syndrome Achieves | dsachieves.org | ||
DS-Connect: National Institutes of Health | nih.gov | ||
Family Network on Disabilities | fndusa.org | ||
Hope Story | hopestory.org | ||
Lumind | lumindidsc.org | ||
Addressing Inequalities for Black Families in The DS Community | mydsc.org | Lumind and BDSA | |
Down Syndrome and Sleep Apnea | mydsc.org | Lumind | |
Weight Management Recommendations for Youth With Down syndrome | mydsc.org | LUMIND | |
NDSS | ndss.org | ||
Alzheimers Disease Down Syndrome Practical Guidebook for Caregivers | ndss.org | Individuals with Down syndrome are commonly affected by Sleep Apnea and Alzheimer’s disease. | NDSS |
Regression and Down Syndrome | ndss.org | NDSS | |
Raising Robust Readers | raisingrobustreaders.com | ||
Ruby's Rainbow | rubysrainbow.org | ||
The Lucky Few Foundation | theluckyfewfoundation.org | ||
Upside Downs | upside-downs.org | ||
DSAIA | dsaia.org | ||
DSC2U | dsc2u.org | DSC2U | |
Down Syndrome Diagnosis Network | dsdiagnosisnetwork.org | ||
DSRF | dsrf.org | ||
Resource/Organization | Website | Other Information | Resource Author |