Community Down Syndrome Resources
Like all things in life, being well-informed and prepared for the future is the key to living stress-free now. We feel it is more important than anything for ALL families, caregivers and supporters of the Down syndrome community to know of the abundance of resources available to them. These resources can drastically improve the quality of life of individuals with Down syndrome and their loved ones.
Note that these resources are affiliated with a variety of organizations from the Down syndrome community. We hope, through the sharing of these resources, the Down syndrome community can be properly prepared to live their best life possible!
Resource/Organization | Website | Other Information | Resource Author |
---|---|---|---|
Regression and Down Syndrome | ndss.org | NDSS | |
Alzheimers Disease Down Syndrome Practical Guidebook for Caregivers | ndss.org | Individuals with Down syndrome are commonly affected by Sleep Apnea and Alzheimer’s disease. | NDSS |
Adult Sibling Toolkit | ndsccenter.org | NDSC | |
Addressing Inequalities for Black Families in The DS Community | mydsc.org | Lumind and BDSA | |
Weight Management Recommendations for Youth With Down syndrome | mydsc.org | LUMIND | |
Down Syndrome and Sleep Apnea | mydsc.org | Lumind | |
DSC2U | dsc2u.org | DSC2U | |
Down Syndrome Answers | cdss.ca | CDSS | |
Adult Down Syndrome Clinic Resource Page | advocatehealth.com | ADSC | |
Reducing the risk of Getting Alzheimers | advocatehealth.com | ADSC | |
Two Syndromes | advocatehealth.com | ADSC | |
Upside Downs | upside-downs.org | ||
The Lucky Few Foundation | theluckyfewfoundation.org | ||
Ruby's Rainbow | rubysrainbow.org | ||
Raising Robust Readers | raisingrobustreaders.com | ||
NDSS | ndss.org | ||
National Down Syndrome Congress | ndsccenter.org | ||
National Association for Down Syndrome | |||
Mann Method PT | mannmethodpt.com | ||
Lumind | lumindidsc.org | ||
International Mosaic Down Syndrome Association | imdsa.org | ||
Hope Story | hopestory.org | ||
Global Down Syndrome Foundation | globaldownsyndrome.org | ||
Family Network on Disabilities | fndusa.org | ||
DSRF | dsrf.org | ||
Resource/Organization | Website | Other Information | Resource Author |