DS-Connect®: The Down Syndrome Registry

Is your family member with Down syndrome registered with DS-Connect®?

DS-Connect®: The Down Syndrome Registry is a voluntary and confidential registry, launched by the National Institutes of Health,  that collects basic information on individuals with Down syndrome.

According to the DS-Connect website, this online registry helps individuals with Down syndrome and their families to:

• Connect with researchers and health care providers.
• Express interest in participating in certain clinical studies on Down syndrome, including studies of new medications and other treatments.
• Take confidential health-related surveys. These surveys are aimed at better understanding the health of people with Down syndrome across their lifespans.

Join DS-Connect® by going to https://DSConnect.nih.gov and click “Join the registry”. Create an account, complete the consent form, and provide information and complete a variety of surveys on the individual with Down syndrome.

Your participation is greatly appreciated!