Down Syndrome Clinic Conference – Fall 2020

Healthy transitions to adulthood – Saturday, November 7th

This conference is designed for families with transition-aged youth ages 14-21 (but anyone is welcome) who are preparing to enter the world of adult health care. The speakers below will share cutting- edge resources, research, and information for families who have loved ones with Down syndrome. This year the conference is free but you must register, from Children’s Hospital Wisconsin.

Registration: https://reg.learningstream.com/s_reg/reg_registration_maintenance.aspx?vt=EXT&ek=0012-0013-5fd5ba1d04204b4db99d036ea0574b14

8:30 AM – Welcome and Introductions

Terri Couwenhoven MS Clinic Coordinator – Children’s Wisconsin Down Syndrome Clinic

8:45 AM  Child and Family Influences on Weight Management

Workshop Description- Weight management can be a common concern for individuals with Down syndrome, but there is limited research on nutrition, exercise, metabolism, and weight management specific to individuals with Down syndrome and other disabilities. In this workshop, preliminary findings from research related to factors that can influence weight management in individuals with Down syndrome, with a focus on how the family environment may influence individuals’ eating habits and weight status will be discussed.

10:00 AM  Adult Healthcare Guidelines for People with Down syndrome

Workshop Description- Although health management guidelines for adults with Down syndrome have existed since 1999, these initial guidelines were based on consensus from physician experts in the field. More recently, the Global Down Syndrome Healthcare Guidelines project in conjunction with the Down Syndrome Interest Group-USA (DSMIG-USA) have created soon- to- be-published, evidence-based, consensus guidelines for providing care to adults with Down syndrome. Dr. Chicoine will share these updated guidelines, improve our understanding of co-occurring conditions in adults with Down syndrome and address questions about the efficacy, risks and benefits of screening asymptomatic adults with Down syndrome for conditions that are more, less or of equal prevalence as those without Down syndrome.

11:00 AM Everything you wanted to know about DSC2U- A virtual health & wellness resource for people with Down syndrome

Workshop Description- Very few families who have loved ones with Down syndrome live in an area where they can visit a Down syndrome specialty program like the Down syndrome clinic at Children’ Wisconsin. Even fewer of these clinics exist for adults who have Down syndrome and it is common for most primary care physicians to have only one or two patients with Down syndrome in their practice. Learn how Down Syndrome Clinic to You (DSC2U) can be used as a tool for bringing the best of health and wellness information specific to Down syndrome to caregivers and primary care physicians no matter where you live.