Rethink, Relearn, and Redefine What You Know About Down Syndrome!

This Down Syndrome Awareness Month, we’re sharing daily facts to celebrate and raise awareness about the abilities of individuals with Down syndrome. DSAM is about breaking down barriers, promoting advocacy, and fostering inclusion. Follow along, share these facts with friends, family, and your community, and help us educate others. Together, we can change how the world views Down syndrome! This month, check out our daily posts on our social media platforms (Facebook, Instagram, Linked In) highlighting important facts and incredible stories from GiGi’s Playhouse.

1 –1 in 772 babies are born with Down syndrome in the United States.

Down syndrome is the most common chromosomal condition diagnosed in the United States.

2 – 400,000 people live with Down syndrome in the United States.

Around 400,000 people in the U.S. are living with Down syndrome. With positive support, education, and opportunities, individuals with Down syndrome can lead fulfilling lives and make meaningful contributions to their communities. Promoting awareness and acceptance is essential for inclusion and success.

3 – Down syndrome is a genetic condition in which a person is born with a full or partial copy of the 21st chromosome.

People with Down syndrome have 47 chromosomes instead of the typical 46. Down syndrome occurs when an individual has a full or partial extra copy of chromosome 21. This additional genetic material alters the course of development and causes the characteristics associated with Down syndrome.

4 – “Down” syndrome was first described by Dr. John Langdon Down in 1886.

Dr. John Langdon Down was a British physician known for his work in identifying Down syndrome in 1866, which is why the condition is named after him using a capital ‘D’ and a lowercase ‘s’. He was a pioneer in advocating for compassionate care and understanding of individuals with intellectual disabilities during a time when they were often mistreated. His research laid the foundation for modern understanding and support of people with Down syndrome. We also advocate for the proper terminology, stating Down syndrome not Downs’.

5 – 80% of children born with Down syndrome are born to women under 35 years old.

The incidence of births of children with Down syndrome increases with the age of the mother. However, due to higher fertility rates in younger women, 80% of children with Down syndrome are born to women under 35 years of age.

6 – There are 3 types of Down syndrome:

• Trisomy 21 – 95%
• Translocation – 4%
• Mosaicism – 1%

There are three types of Down syndrome. T21 (or non-disjunction) is the most common. All cells have an extra chromosome. Translocation Down syndrome occurs when part of chromosome 21 becomes attached (translocated) to another chromosome. Children with translocation Down syndrome have the usual two copies of chromosome 21, but they also have additional material from chromosome 21 attached to the translocated chromosome. Mosaic Down syndrome, where only some cells have an extra chromosome, but other cells in the body are typical.

7 – Children with Down syndrome do best in inclusive classrooms with appropriate accommodations.

Kids with Down syndrome do best in an inclusive learning environment, and typical kids do best when they learn about diversity, kindness, and friendship at an early age. Inclusive classrooms teach and benefit all kids. Want to learn more, register for our next Educator Symposium – https://gigisplayhouse.org/educator-symposium/

8 – Common Medical Conditions:

• congenital heart defects
• respiratory problems
• thyroid conditions
• visual impairments

People with Down syndrome may face a range of health conditions, including heart defects, respiratory issues, and thyroid disorders. They are also at higher risk for hearing and vision problems, sleep apnea, and certain autoimmune conditions. Regular medical check-ups and early interventions are important to manage these health challenges and support their overall well-being.

9 – Roughly 50% of people with Down syndrome will experience Alzheimer’s Disease with symptoms beginning in their 50s or 60s.

Chromosome 21 plays a key role in the relationship between Down syndrome and Alzheimer’s disease. Scientists have located several genes on chromosome 21 that are involved in the aging process and that contribute to the increased risk of Alzheimer’s disease.

10 – One cannot have “mild” or “severe” Down syndrome. You either have it or not. It is not a spectrum.

People don’t have “mild” Down syndrome, or “severe” Down syndrome. Ability is not dependent on the condition, but rather the individual. People either have Down syndrome or they don’t.

11 – We prefer “a person with Down syndrome” not “a Down syndrome person” but instead “person with Down syndrome”.

Language Matters. Help spread it! – Individuals with Down syndrome are not defined by the condition. They should be referred to as “a person with Down syndrome” or our favorite use their name!

12 – People with Down syndrome look like their family more than anyone else.

While there are certain characteristic physical features that set people with Down syndrome apart, people with Down syndrome resemble their families more than they resemble one another.

13 – Individuals with Down syndrome are beautiful inside and out.

People with Down syndrome are beautiful inside and out, radiating all of the emotions that all people feel, joy, kindness, anger, frustration, love, and a unique perspective on life. Their unique outlook, resilience, determination, and genuine compassion touch the hearts of everyone they meet. Our friends may inspire and enrich their communities but it is also important to treat them as people and use age-appropriate conversations and voices.

14 – 99% of people with Down syndrome report they are happy with their lives. Can you say the same?

People don’t “suffer” from Down syndrome; they experience life like anyone else, with their own unique challenges and triumphs. In fact, a study conducted by Dr. Brian Skotko found that 99% of adults with Down syndrome reported they were happy with their lives. This highlights that people with Down syndrome often experience a high quality of life, find joy in relationships, and contribute meaningfully to their communities. Happiness and a positive outlook are just a few aspects of life, it doesn’t define who they are nor does it apply to everyone with Down syndrome.

15 – Don’t use the “R-word” EVER! We are not less-valued members of humanity!

“Intellectual disability” or “cognitive disability” has replaced “mental retardation” as the appropriate term. The R-word is offensive, it hurts. People with Down syndrome deserve respect. If you hear someone saying it, speak up! We know it’s hard, but beginning a conversation with someone is the quickest way to rid society of this ugly word.

16 – Average life expectancy for people with Down syndrome has more than doubled in the last 40 years!

Life expectancy for people with Down syndrome has increased significantly over the past few decades, rising from just 25 years in 1983 to around 60 today. This improvement is largely due to advances in medical care, early intervention, and increased awareness of the health needs of individuals with Down syndrome. Today, people with Down syndrome have better access to specialized healthcare. As a result, they are living longer, healthier lives and are increasingly able to pursue their goals, build meaningful relationships, and fully participate in their communities.

17 – Many people with Down syndrome have low muscle tone which affects postural control, stability, mobility, breathing, eating, and speech.

People with Down syndrome often have low muscle tone, a condition known as hypotonia. This affects their strength and coordination, making tasks like sitting up, crawling, walking, or even speaking more challenging, especially in early development. Low muscle tone can impact fine motor skills as well, making it harder to grasp small objects, use utensils, or perform tasks requiring precise movements. However, with targeted therapies such as physical, occupational, and speech therapy, individuals with Down syndrome can strengthen their muscles, improve motor skills, and increase their independence in daily activities.

18 – 79% of parents to a child with Down syndrome feel their outlook on life is more positive because of their child.

Research shows that 79% of parents of a child with Down syndrome say their outlook on life is more positive because of their child. Many parents feel their child has brought more joy, patience, and appreciation for everyday moments, while also deepening their sense of love and purpose. Their children’s unique perspectives often inspire families to embrace what truly matters and celebrate life’s little victories.

19 – Down syndrome is not an illness or disease, but rather a genetic condition caused by the presence of an extra 21st chromosome.

Down syndrome is not an illness or disease; it’s a genetic condition caused by the presence of an extra 21st chromosome. This means it is not something that can be caught or transmitted. Just like other traits determined by our genetic makeup—such as the color of our eyes, hair, or height—Down syndrome is simply a part of who someone is. Genetics play a crucial role in shaping our physical characteristics, and in the case of Down syndrome, it influences cognitive and developmental aspects as well.

20 – People with Down syndrome are not all the same! We are ALL individuals, regardless of our chromosomal makeup.

Not all people with Down syndrome are the same; each individual has their own unique personality, interests, and strengths. Just because you know one person with Down syndrome doesn’t mean you understand everyone with the condition. This individuality highlights that we are all human, regardless of how many chromosomes we have. By embracing these differences, we foster acceptance and break down stereotypes, reminding ourselves that every person deserves to be valued for who they truly are.

21 – People with Down syndrome have beautiful features that make them extra awesome! People with Down syndrome have beautiful features that make them extra awesome!

Many people will reference the typical physical features of individuals with Down syndrome, but little do they know we have some amazing features that make us extra great! Many (but not all!) people with Down syndrome often have unique physical traits that make them special and interesting, such as a sandal gap, Brushfield spots, and a single palmar crease. The “sandal gap” is a gap between the first and second toes, giving the foot a distinctive appearance. Brushfield spots are small, light-colored speckles that appear on the iris of the eyes, making our eyes sparkle and stand out. A single palmar crease, where a single line runs across the palm instead of the typical two, can be a fascinating feature. These traits are just part of what makes people with Down syndrome beautifully unique, highlighting the diversity of human appearance and showing that differences should be celebrated as cool characteristics that make each person one-of-a-kind.

22 – Independence is rewarding and encouraging!

Individuals with Down syndrome can be independent in many areas of their lives, from managing daily tasks to pursuing careers, hobbies, and social activities. It’s important to respect each person’s abilities by not assuming they need help right away. Instead, wait for them to ask if they need assistance. Stepping in too quickly can unintentionally undermine their confidence and autonomy. By giving them the space to try things on their own, you’re supporting their growth, showing respect, and reinforcing that they are capable of achieving independence in their own unique way. Patience and encouragement go a long way!

23 – Each person with Down syndrome offers a new opportunity for friendship and inclusion.

Even if you already have a loved one with Down syndrome, take the opportunity to meet someone else with the condition! Every person with Down syndrome has their own unique personality, talents, and story to share. By saying hello and introducing yourself, you’re creating connections and building a stronger, more inclusive community. Encourage your kids, friends, and others to do the same—it’s a simple act that helps break down barriers and fosters acceptance. Every new friendship made helps spread the message that people with Down syndrome deserve to be seen, valued, and included in all aspects of life. Take a chance and become a volunteer today to learn more about our community and meet some great new friends! https://gigisplayhouse.org/milwaukee/volunteer/.

24 – A great way to promote Down syndrome awareness is by attending inclusive events that celebrate acceptance and inclusion!

A great way to promote Down syndrome awareness is by attending inclusive events that celebrate acceptance and community. Bring your family, friends, and neighbors to events like our GiGiFIT Acceptance Challenge every May or the Brew HaHa this October! Participating in these events not only shows support but also helps create a space where individuals of all abilities feel valued and included. It’s a fun and impactful way to raise awareness, build connections, and spread the message of acceptance for all. Your presence can make a real difference! Check out our website to learn all about what GiGi’s Playhouse Milwaukee has to offer https://gigisplayhouse.org/milwaukee.

25 – GiGi’s Playhouse Milwaukee serves individuals and families across 11 counties in Wisconsin.

GiGi’s Playhouse Milwaukee serves the following 11 counties in Wisconsin: Milwaukee, Waukesha, Ozaukee, Washington, Racine, Kenosha, Walworth, Dodge, Jefferson, Sheboygan, and Fond du Lac. Our location may be small, but our reach is big! We are always looking to connect to expand our services and reach more families. If you have an idea or want to connect reach out to Sara at svandeurzen@gigisplayhouse.org

26 – GiGi’s Playhouse Milwaukee offers a lifetime of support.

GiGi’s Playhouse Milwaukee offers a lifetime of support for individuals with Down syndrome and their families. From prenatal support through adulthood, we provide free educational, therapeutic, and social programs designed to help each participant reach their full potential at every stage of life. With a welcoming and inclusive environment, GiGi’s ensures that no matter the age or ability, individuals and families have a place where they can grow, connect, and thrive. This ongoing support fosters confidence, independence, and a sense of community that lasts a lifetime.

27 – GiGi’s Playhouse Milwaukee serves over 550 families!

GiGi’s Playhouse Milwaukee serves over 550 families, providing a supportive and welcoming environment for individuals with Down syndrome and their loved ones. Each family benefits from a variety of free programs, including educational workshops and parent-focused events, therapeutic services, social activities, and career-oriented skill building. All of which are tailored to meet the unique needs of individuals at different stages of life. This commitment to support extends beyond just the individual; it fosters a sense of community among families, allowing them to share experiences, resources, and encouragement. By connecting families, GiGi’s Playhouse helps build strong networks of support that empower individuals with Down syndrome to thrive and achieve their fullest potential.

28 – Your specialized skills are so important to us!

Are you a photographer, writer, handyman, or do you have another skill to share? Consider volunteering at GiGi’s Playhouse to share your expertise! Whether being a photographer at events, hosting writing sessions, or providing handyman skills around the playhouse, your knowledge can make a significant impact. Assisting in events, fundraising, or volunteering at GiGi’s Playhouse Milwaukee is a rewarding way to give back while helping both participants and the playhouse. By sharing your skills, you’ll create meaningful connections and foster a supportive environment where everyone can thrive! Learn about volunteering and start changing lives, including yours! https://gigisplayhouse.org/milwaukee/volunteer/

29 – Many companies offer donation matching programs for nonprofits like GiGi’s Playhouse Milwaukee!

Check with your employer to see if they’ll match your donation and double your impact in supporting individuals with Down syndrome. https://gigisplayhouse.org/milwaukee/support-us/

30 – A great way to support your local individuals with Down syndrome is to visit inclusive businesses.

Visit stores, coffee shops, and businesses that prioritize employing people with Down syndrome and other disabilities! Supporting these establishments creates inclusive job opportunities and fosters a culture of acceptance. Bring your kids and friends to engage with employees and learn about their valuable contributions. This encourages empathy and awareness, teaching future generations the importance of inclusion and diversity in the workplace. Additionally, talk to your employer or local businesses about hiring individuals with Down syndrome to further support this mission!

31 – Halloween might be scary, but Down syndrome isn’t!

Halloween might be full of frights, but Down syndrome isn’t one of them! For most families, living with Down syndrome means experiencing joy, love, and a lot of fun. Individuals with Down syndrome bring unique perspectives, humor, and heart to their families and communities. If you don’t know someone with Down syndrome, you’re truly missing out on the chance to connect with people who see the world through a lens of kindness and positivity. So, while Halloween is a time for spooky surprises, let’s remember that Down syndrome is something to be celebrated, not feared!

Be #GenerationG! – Congratulations! You made it to the end of 31 Down Syndrome Facts for Down Syndrome ACCEPTANCE Month! Now that DSAM is over, ensure that you stay generous, kind, and accepting year-round. Find even more resources here – https://gigisplayhouse.org/downsyndromeresources/