Resources

Down Syndrome Community New York City (DSCNYC) - groups.yahoo.com/groups/dscnyc/

This list serve is a community group email with over 100 families in the New York Metropolitan area. This is a group email where you can ask advice, find a therapist or doctor, share your joys, trade in your therapeutic toys, and generally share community resources. (if you wish to limit the amount of email you get each day, choose ‘daily digest’ instead of ‘individual emails’ and you will get only one email per day with the entire day’s correspondence.

Down TV - Downtv.org

downtv2This is a place to see videos of children with Down syndrome around the world, news clips related to Down syndrome, talks and commentary from individuals who support the Down syndrome community.

You can upload your own video clips to make this a truly vibrant encyclopedia of video related to Down syndrome.

Down Syndrome Research and Treatment Foundation (DSRTF)

DSI

advocates-for-children-logoAdvocates for Children of New York (AFC) serves New York City children and youth, from birth through age 26, who are struggling in school or experiencing school discrimination of any kind. We have over 40 years of experience protecting and promoting the rights of students with disabilities. We offer free advice and information on any school-related issue via our Education Helpline (866-427-6033 Mon-Thurs, 10 am-4 pm); informative workshops and a wide range of free resources, such as tip sheets and guidebooks, to help parents advocate on behalf of their children’s educational rights; and free legal counsel and case advocacy to families from low-income backgrounds, including representation at school-related hearings and appeals.

National Down syndrome Society - NDSS

Down Syndrome International - DSI

Recursos en español

ndssNDSS – Sociedad Nacional del síndrome de Down – http://www.ndss.org/Resources/NDSS-en-Espanol/

La NDSS tiene como objetivo proporcionar a las familias, individuos con síndrome de Down, profesionales de asistencia médica, profesionales de la educación y al público general, múltiples recursos web completos y accesibles sobre el síndrome de Down en español.

FIDFundación Iberoamericana Down 21 – www.down21.org

El CanalDown21, de la Fundación Iberoamericana Down21, es un portal de información y formación sobre el síndrome de Down en lengua española.

rrivbaArriba – Standing up for Down syndrome – www.arribaproject.cl

Arriba fue creado para crear conciencia sobre el síndrome de Down por medio de experiencias compartidas. Verónica Labarca (una practicante de Chile en nuestra Playhouse) fundó esta plataforma social para compartir su trabajo durante los meses de Enero y Febrero del 2015 en GiGi’s Playhouse NYC haciendo este centro comunitario más accesible a las familias de habla Hispana.

Libros gratuitos para descargar

  • “Del diagnóstico al nacimiento: Una guía para las mujeres embarazadas de un bebé con síndrome de Down” de Nancy McCrea Iannone y Stephanie Hall Meredith

http://downsyndromepregnancy.org/book/del-diagnostico-al-nacimiento/

  • “Envejecimiento y Síndrome de Down. Una guía de Salud y Bienestar” de NDSS

http://www.ndss.org/PageFiles/2594/Envejecimiento%20y%20S%C3%ADndrome%20de%20Down.pdf

  • “Programación educativa para escolares con síndrome de Down” de Emilio Ruiz Rodríguez

http://www.down21materialdidactico.org/libroEmilioRuiz/libroemilioruiz.pdf