Sharing Family Resources: CARE Down Syndrome

“According to a survey from the National Down Syndrome Society (NDSS), the greatest concern among adults with Down syndrome and their caregivers is the limited access to healthcare professionals trained in their unique medical needs. Only an estimated 5% of adults with Down syndrome in the U.S. have access to specialty Down syndrome clinics.” This quote is taken from the website for
CARE Down Syndrome – an amazing resource for any family with an individual with Down syndrome, to share with their Primary Care Physician. The CARE Down Syndrome initiative offers medical professionals information specific to those with a Down syndrome diagnosis, in the hopes of improving their healthcare.

This initiative includes a self-paced eLearning course, reference articles, a resource library, and free CME credits can be earned by completing the main two-hour CARE Down Syndrome eLearning Course or any of the17 topic-specific reference article courses. New content will be continually added to the site.

As many parents can relate, I became accustomed to sharing information, articles, ideas, etc., with my child’s team at school in order to improve her educational outcomes, so this is a no-brainer for me. We love our pediatrician and trust him completely, but sharing is caring! Perhaps he knows much of this information, but another doctor in the practice may not. You never know who will gain useful information from what you share.

You can check out the CARE Down Syndrome website here.

Wishing everyone a very happy and healthy 2026!