Resources

Local and New York State Websites:

ARC - http://www.thearc.org/page.aspx?pid=2530
The Arc is the nation's leading advocate for all people with intellectual and developmental disabilities and their families and the premier provider of the supports and services people want and need.

PACDS - https://www.arcwestchester.org
The Parent Assistance Committee on Down Syndrome (PACDS) is a parent-led support network serving Westchester County, just north of New York City. We have all experienced the power of parent-to-parent understanding and support and are available to pass on that support and friendship to others.  We have a long history in Westchester, being founded in 1972, and still operate under the auspices of Westchester Arc, our parent agency.  Our families are available to provide:

  • Telephone calls, home or hospital visits to new parents
  • Information and resources, including a lending library
  • Suggestions about programs and services
  • Support meetings and activities for children, young adults and families

21strong - http://www.21strong.org
They are a group of families located in Fairfield County, Connecticut, who came together because their lives have been enriched by Down syndrome. Contact them to join their yahoo group and Facebook page.

www.aim-high.org Down Syndrome Aim High Resource Center is a nonprofit organization in the capital district, which exists to enlighten and encourage the broader community to recognize the individuality, uniqueness and capabilities of individuals with Down syndrome, and to reflect the hopes and dreams of those individuals and their families.

www.alexandersangels.org Furthering awareness and supporting research on Down syndrome

Down Syndrome Association of the Hudson Valley - www.dsahv.org

http://www.hudson211.org
 
http://www.secrec.org
 
http://sparcinc.org
 
http://www.wihd.org

Spanish - Speaking:

www.down21.org
It aims to promote the social assistance and inclusion of people with Down syndrome or other intellectual disabilities, through their various actions, programs and projects. Within these actions, the Fundación Iberoamericana Down 21 develops the exploitation of new technologies related to communication through multimedia services. This is how he has developed a complete offer of training and information on Down syndrome in Spanish, which began with the creation in 2000 of Channel Down21.

National Organizations:

Disability Resource Community - view page
Use this website to apply for an Access Pass, which is a free, lifetime pass available to United States citizens or permanent residents, regardless of age, that have a permanent disability that can be used at over 2,000 Federal recreation sites across the nation, including National Parks, National Wildlife Refuges, and many National Forest lands.

National Down Syndrome Society - https://www.ndss.org
The mission of the National Down Syndrome Society is to benefit people with Down syndrome and their families through national leadership in education, research and advocacy.

Global Down Syndrome Foundation - http://www.globaldownsyndrome.org
The Global Down Syndrome Foundation is a public non-profit 501(c)(3) dedicated to significantly improving the lives of people with Down syndrome through Research, Medical Care, Education and Advocacy.

National Association for Down Syndrome - http://www.nads.org
A not for profit organization based in Chicago that offers information, support and public awareness.

National Down Syndrome Congress - https://www.ndsccenter.org
The mission of the NDSC is to provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome.

Lumind Foundation  - http://www.lumindfoundation.org
Formerly Down Syndrome Research and Treatment Foundation, they are dedicated to finding a treatment to improve cognition including learning, memory and speech for individuals with Down syndrome.

https://www.down-syndrome.org
Down Syndrome Education Online offers comprehensive information about Down syndrome, including articles, books and scientific papers.

International Websites:

Down Syndrome International (DSi) - https://ds-int.org
Down Syndrome International (DSi) is a UK based international charity, comprising a membership of individuals and organisations from all over the world, committed to improving quality of life for people with Down syndrome worldwide and promoting their inherent right to be accepted and included as valued and equal members of their communities.

Down Syndrome Research Foundation located in British Columbia, Canada - www.dsrf.org

Website for WDSD (March 21st) - www.worlddownsyndromeday.org

Other Resources:

www.wrightslaw.org - Wrights Law provide advice and seminars on special education law and advocacy.

The SKATE Foundation - http://theskatefoundation.org

www.mosaicdownsyndrome.com

www.brianskotko.com - Dr Brian Skotko’s website – he is a specialist in the Down Syndrome Program at Children’s Hospital in Boston.

Down TV – DownTV.org
This is a place to see videos of children with Down syndrome around the world, news clips related to Down syndrome, talks and commentary from individuals who support the Down syndrome community. You can upload your own video clips to make this a truly vibrant encyclopedia of video related to Down syndrome

Books and Education websites

  • Teaching Reading Skills to Children with Down Syndrome: A Guide For Parents and Teachers – Patricia Logan Oelwein
  • Teaching Math to People with Down Syndrome and Other Hands-On Learners – DeAnna Horstmeier
  • www.raisingrobustreaders.com Phonics reading program