Resources

Local Area:  

ARC - http://www.thearc.org/page.aspx?pid=2530 

The Arc is the nation's leading advocate for all people with intellectual and developmental disabilities and their families and the premier provider of the supports and services people want and need. 

They also provide a list of services organized by age, please click here. 

 

PACDS - https://www.arcwestchester.org/services/family-support-groups 

The Parent Assistance Committee on Down Syndrome (PACDS) is a parent-led support network serving Westchester County, just north of New York City. We have all experienced the power of parent-to-parent understanding and support and are available to pass on that support and friendship to others.  We have a long history in Westchester, being founded in 1972, and still operate under the auspices of Westchester Arc, our parent agency.  Our families are available to provide: 

  • Telephone calls, home or hospital visits to new parents 
  • Information and resources, including a lending library 
  • Suggestions about programs and services 
  • Support meetings and activities for children, young adults and families 

 

 21strong - http://www.21strong.org 

A group of families located in Fairfield County, Connecticut, who came together because their lives have been enriched by Down syndrome. Contact them to join their yahoo group and Facebook page. 

 

Down Syndrome Association of the Hudson Valley - www.dsahv.org  

Down Syndrome Association of Westchester - www.westchesterdsa.org 

 

New York State - Special Education Office

Website of the Office of Special Education Office of the New York State Education Department (NYSED). View
 

New York State - OPWDD

Website of the New York State Office for People with Developmental Disabilities (OPWDD). View
 

New York State - Self Direction Program

Webpage of the New York State Office for People with Developmental Disabilities (OPWDD) on Self Direction. View
 

New York State - ACCES-VR

Website of the New York State Education Department, Adult Career and Continuing Education Services - Vocational Rehabilitation (ACCES-VR). View

 

Spanish Websites: 

www.down21.org

It aims to promote the social assistance and inclusion of people with Down syndrome or other intellectual disabilities, through their various actions, programs and projects.Within these actions, the Fundación Iberoamericana Down 21 develops the exploitation of new technologies related to communication through multimedia services.This is how he has developed a complete offer of training and information on Down syndrome in Spanish, which began with the creation in 2000 of Channel Down21 (www.down21.org). 

 

National 

Down TV – DownTV.org 

This is a place to see videos of children with Down syndrome around the world, news clips related to Down syndrome, talks and commentary from individuals who support the Down syndrome community. 

You can upload your own video clips to make this a truly vibrant encyclopedia of video related to Down syndrome 

National Down Syndrome Society - NDSS  

Down Syndrome Research and Treatment Foundation (DSRTF) -

http://www.dsrf.org/about-us/about-dsrf/ 

The mission of the Down Syndrome Research Foundation is to empower individuals with Down syndrome to reach their full potential throughout life by pioneering and providing educational programs and services, grounded in foundational research. Working with researchers, professionals and families, we are a bridge between research and practice. 

Down Syndrome International (DSi) - https://ds-int.org 

Down Syndrome International (DSi) is a UK based international charity, comprising a membership of individuals and organisations from all over the world, committed to improving quality of life for people with Down syndrome worldwide and promoting their inherent right to be accepted and included as valued and equal members of their communities. 

The SKATE Foundation - http://theskatefoundation.org 

https://www.down-syndrome.org 

Down Syndrome Education Online offers comprehensive information about Down syndrome, including articles, books and scientific papers.  

Global Down Syndrome Foundation - http://www.globaldownsyndrome.org 

The Global Down Syndrome Foundation is a public non-profit 501(c)(3) dedicated to significantly improving the lives of people with Down syndrome through Research, Medical Care, Education and Advocacy. Formally established in 2009, Global’s primary focus is to support the Linda Crnic Institute for Down Syndrome, the first academic home in the United States committed solely to research and medical care for people with Down syndrome. Since Down syndrome is the least-funded genetic condition in the United States, fundraising and government advocacy to correct the alarming disparity of national funding for people with Down syndrome is a major goal. 

National Association for Down Syndrome - http://www.nads.org 

National Down Syndrome Congress - https://www.ndsccenter.org 

Useful Books and Other Resources: 

  • Teaching Reading Skills …….. 
  • NYC resource page 
  • INC resource page 

 

 

Spanish - Speaking:

www.down21.org
It aims to promote the social assistance and inclusion of people with Down syndrome or other intellectual disabilities, through their various actions, programs and projects. Within these actions, the Fundación Iberoamericana Down 21 develops the exploitation of new technologies related to communication through multimedia services. This is how he has developed a complete offer of training and information on Down syndrome in Spanish, which began with the creation in 2000 of Channel Down21.

National Organizations:

Disability Resource Community - view page
Use this website to apply for an Access Pass, which is a free, lifetime pass available to United States citizens or permanent residents, regardless of age, that have a permanent disability that can be used at over 2,000 Federal recreation sites across the nation, including National Parks, National Wildlife Refuges, and many National Forest lands.

National Down Syndrome Society - https://www.ndss.org
The mission of the National Down Syndrome Society is to benefit people with Down syndrome and their families through national leadership in education, research and advocacy.

Global Down Syndrome Foundation - http://www.globaldownsyndrome.org
The Global Down Syndrome Foundation is a public non-profit 501(c)(3) dedicated to significantly improving the lives of people with Down syndrome through Research, Medical Care, Education and Advocacy.

National Association for Down Syndrome - http://www.nads.org
A not for profit organization based in Chicago that offers information, support and public awareness.

National Down Syndrome Congress - https://www.ndsccenter.org
The mission of the NDSC is to provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome.

Lumind Foundation  - http://www.lumindfoundation.org
Formerly Down Syndrome Research and Treatment Foundation, they are dedicated to finding a treatment to improve cognition including learning, memory and speech for individuals with Down syndrome.

https://www.down-syndrome.org
Down Syndrome Education Online offers comprehensive information about Down syndrome, including articles, books and scientific papers.

International Websites:

Down Syndrome International (DSi) - https://ds-int.org
Down Syndrome International (DSi) is a UK based international charity, comprising a membership of individuals and organisations from all over the world, committed to improving quality of life for people with Down syndrome worldwide and promoting their inherent right to be accepted and included as valued and equal members of their communities.

Down Syndrome Research Foundation located in British Columbia, Canada - www.dsrf.org

Website for WDSD (March 21st) - www.worlddownsyndromeday.org

Other Resources:

www.wrightslaw.org - Wrights Law provide advice and seminars on special education law and advocacy.

The SKATE Foundation - http://theskatefoundation.org

www.mosaicdownsyndrome.com

www.brianskotko.com - Dr Brian Skotko’s website – he is a specialist in the Down Syndrome Program at Children’s Hospital in Boston.

Down TV – DownTV.org
This is a place to see videos of children with Down syndrome around the world, news clips related to Down syndrome, talks and commentary from individuals who support the Down syndrome community. You can upload your own video clips to make this a truly vibrant encyclopedia of video related to Down syndrome

Books and Education websites

  • Teaching Reading Skills to Children with Down Syndrome: A Guide For Parents and Teachers – Patricia Logan Oelwein
  • Teaching Math to People with Down Syndrome and Other Hands-On Learners – DeAnna Horstmeier
  • www.raisingrobustreaders.com Phonics reading program