What Does World Down Syndrome Day Mean to a Parent?
I am about two and half years into my journey since Luccia's prenatal diagnosis and this perspective has evolved significantly. My initial thoughts and feelings were filled with fear...how could I raise a sick child with special needs? I needed to learn acceptance, patience, and courage. What I already possessed...
What is it like to have a sibling with Down syndrome?
What is it Like to Have a Sibling with Down Syndrome? As a way to promote acceptance and awareness during Down syndrome Acceptance month, some of our families are posting information about Down syndrome on their Facebook and allowing others to ask questions about Down syndrome. Awesome mom, Gina Buffone,...
Emma’s “Gotcha” Day
As I write this at the kitchen table, I am observing five year old Emma in the family room watching her Boz Counting video, dancing to the music and singing the songs (in the language that only Emma knows.) I smile to myself - my heart is full. This day,...
25 Days of Kindness in December
Throughout the month of December, in the spirit of the Holiday season, we participated in "25 Days of Kindness" and recognized our corporate sponsors-businesses and organizations who help make it possible for us to continue to offer FREE of charge educational and therapeutic based programs to our participants and their...
Cameron’s Birth Story
Cameron's Birth Story By Dad, Todd After having contractions on a pleasant July morning, Stacy's doctor advised that we go to the hospital to get checked out. After a quick examination, it was confirmed the baby was on its way, and he was breech. It was 6 weeks before our...
Christian’s Birth Story
Christian's Birth Story By Mom, Sandy Was it a surprise to hear that our new baby had Down syndrome? Absolutely! Were we scared, upset, confused, sad, worried? You better believe it! Did we question everything we did, are doing, and will do? Of course! But have we learned to be...
Luke’s Birth Story
Luke's Birth Story By Mom, Diane We did not have a prenatal diagnosis with Luke. Because I would be 40 when I gave birth, the doctors asked that we do a Level 2 ultrasound to see if any issues were apparent...that ultrasound showed no indicators of Down syndrome. I received...
Life with Lina
Life with Lina By Mom, Lisa From day one, Lina has been the BEST baby ever. She hardly cries, she sleeps through the night, she eats like a champ, and is always so happy. Yes—there were several obstacles that we’ve needed to overcome since her birth like open heart surgery,...
Tony’s Diagnosis Story
Tony's Diagnosis Story By Mom, Cielo When we found out that we were pregnant, we were SOOOO happy. We have a lovely little five year old daughter named Hailey who wanted a baby brother SO badly. It was hard for me to get pregnant and carry a child as I've...
Anna’s Diagnosis Story
Anna's Diagnosis Story By Mom, Angela I was 20 weeks pregnant with a 9 month old baby at home when we got the call. The ultrasound showed that our baby had a severe heart defect. And only 20% of babies born with that defect do not have Down Syndrome. That...
