GiGi’s Playhouse Nashville

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Our vision is to see a world where individuals with Down syndrome are accepted and embraced by their families, schools and communities.

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We have many friends at GiGi's Playhouse - Nashville who are feeding tube and/or CHD warriors and we want to celebrate them and their families in an extra special way during Feeding Tube Awareness Week and Congenital Heart Defect Awareness Week! Approximately half of all infants born with Down syndrome have a heart defect. Here is our sweet friend Claire's story via her amazing mama, Kristen... ❤ #GiGisBelieves #StrongerTogether #EducateInspireBelieve #FeedingTubeAwarenessWeek #CHDAware

"It's Congenital Heart Defect (CHD) Awareness Month! 2 years ago...my little princess, at just 3 months old, had open heart surgery to repair her CHD. She had an AVSD (a simplified explanation is that she had 3 significant holes in her heart). Her first 3 months of life were extremely hard including 6 weeks in the NICU, having to receive my breastmilk through a feeding tube rather than nurse, sleeping a ton due to the strain on her heart, and difficulty breathing because of the extra fluid on her lungs that her AVSD caused. This picture was taken 5 days after her surgery and was the first time I was able to hold my baby post-op! 5 days felt like an eternity as we waited for her to be stable enough to be held. I'll never forget that day and the entire process of going through open heart surgery on an infant!"
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