{"id":68533,"date":"2014-01-24T12:56:30","date_gmt":"2014-01-24T17:56:30","guid":{"rendered":"https:\/\/gigisplayhouse.org\/syracuse\/?p=68533"},"modified":"2014-01-24T12:56:30","modified_gmt":"2014-01-24T17:56:30","slug":"nepalese-child-syndrome","status":"publish","type":"post","link":"https:\/\/gigisplayhouse.org\/syracuse\/uncategorized\/nepalese-child-syndrome","title":{"rendered":"A Nepalese child with Down syndrome"},"content":{"rendered":"

It has been far to long since we have shared so today we are bringing a special families story to you. \u00a0Please leave some words of support and encouragement for this family.\u00a0<\/span><\/h2>\n
<\/div>\n
<\/div>\n
<\/div>\n
\"Pari\"<\/a><\/div>\n
<\/div>\n
A Nepalese child with Down syndrome<\/div>\n
I am Hari Koirala from Rochester, New York, USA. I migrated from Nepal in 2008 with my wife. Our daughter, Priyanka “Pari” was born with Down syndrome (DS) in November 2012. There were no complications during my wife’s pregnancy except that she was two weeks early.\u00a0 We found out only\u00a0an\u00a0hour after Pari’s birth\u00a0and she had to be admitted to NICU due to breathing difficulties.\u00a0 I noticed that her facial features were different from that of our other children at birth. I questioned this to her doctor and blood tests later confirmed her diagnosis of DS.<\/span><\/div>\n
\u00a0<\/span><\/div>\n
This was quite unsettling to us. We were not afraid of DS, but\u00a0our community.\u00a0 It was very difficult for my wife to cope because most Nepalese community believes that DS is a curse due to our sins, or bad karma.\u00a0 Fearing what people would say, we decided to keep everything confidential between us and Pari’s doctors.\u00a0 It took us a year to finally open up about it and to have the strength to\u00a0stand up for our daughter and educate our community about DS. Opening a facebook page was our first step.<\/span><\/div>\n
\u00a0<\/span><\/div>\n
DS is no one’s fault.\u00a0 It’s neither a curse, nor a disease, due to pills, or\u00a0over working during pregnancy.\u00a0Down syndrome is a genetic disorder which has the presence of an extra copy of chromosome 21\u00a0which begins at the start of pregnancy. A baby is supposed to be born with 46 chromosomes whereas a DS baby has an extra copy of chromosome 21 resulting in 47 chromosomes.\u00a0 This extra copy changes how the baby’s brain and body develop resulting in both mental and physical challenges for the baby.\u00a0 Although Pari will be delayed, it doesn’t mean that her, or our dreams for her should stop there.\u00a0<\/span><\/div>\n
\u00a0<\/span><\/div>\n
We believe\u00a0Pari being\u00a0born with DS, was\u00a0God’s\u00a0unique\u00a0gift to us!\u00a0We cannot imagine life without her and hope our community will work with us to raise awareness for DS.\u00a0\u00a0\u00a0\u00a0<\/span>
\n<\/span><\/div>\n
\u00a0<\/span><\/div>\n
Hari Koirala<\/div>\n
Pari\u2019s Facebook blog:\u00a0https:\/\/www.facebook.com\/suryodayadownsyndrome<\/a><\/div>\n
<\/div>\n
<\/div>\n
<\/div>\n
<\/div>\n
<\/div>\n

Friends, Pari is going to be having surgery very soon, we encourage you to keep up with this little ladies story by liking her Facebook page.\u00a0<\/span><\/h2>\n

Thank you very much for sharing your story with us Hari, and \u00a0even more thank you for spreading awareness to your culture. \u00a0Pari is changing the world and we are so proud of you all!\u00a0<\/span><\/h2>\n
<\/div>\n
xoxox<\/span><\/div>\n","protected":false},"excerpt":{"rendered":"

It has been far to long since we have shared so today we are bringing a special families story to you. \u00a0Please leave some words of support and encouragement for this family.\u00a0 A Nepalese child with Down syndrome I am Hari Koirala from Rochester, New York, USA. I migrated from Nepal in 2008 with my…<\/p>\n","protected":false},"author":33,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-68533","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"_links":{"self":[{"href":"https:\/\/gigisplayhouse.org\/syracuse\/wp-json\/wp\/v2\/posts\/68533","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/gigisplayhouse.org\/syracuse\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/gigisplayhouse.org\/syracuse\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/gigisplayhouse.org\/syracuse\/wp-json\/wp\/v2\/users\/33"}],"replies":[{"embeddable":true,"href":"https:\/\/gigisplayhouse.org\/syracuse\/wp-json\/wp\/v2\/comments?post=68533"}],"version-history":[{"count":0,"href":"https:\/\/gigisplayhouse.org\/syracuse\/wp-json\/wp\/v2\/posts\/68533\/revisions"}],"wp:attachment":[{"href":"https:\/\/gigisplayhouse.org\/syracuse\/wp-json\/wp\/v2\/media?parent=68533"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/gigisplayhouse.org\/syracuse\/wp-json\/wp\/v2\/categories?post=68533"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/gigisplayhouse.org\/syracuse\/wp-json\/wp\/v2\/tags?post=68533"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}