{"id":141691,"date":"2024-03-29T08:00:33","date_gmt":"2024-03-29T13:00:33","guid":{"rendered":"https:\/\/gigisplayhouse.org\/neworleans\/?p=141691"},"modified":"2024-03-29T08:00:33","modified_gmt":"2024-03-29T13:00:33","slug":"patience","status":"publish","type":"post","link":"https:\/\/gigisplayhouse.org\/neworleans\/2024\/03\/29\/patience\/","title":{"rendered":"Patience"},"content":{"rendered":"\n
\"\"<\/figure>\n\n\n\n

When a couple finds out they\u2019re having a baby, people have a tendency to imagine their child\u2019s whole life. You imagine him taking his first steps, saying his first words, what sport he\u2019ll play, what college he\u2019ll go to. And so on and so on.

Then when you find out the baby\u2019s sex, you may have to adjust a bit, but there is still a sense of anticipation. And when the baby is born, it only increases. Now you\u2019re waiting for your baby\u2019s firsts.

My nephew was born with Down syndrome a little over two years ago. There\u2019s been a lot of anticipation, but more often than not a lot of adjustments of expectations. When you love a child born with Down syndrome, you have to learn patience.

We have these silly notions that there is a timetable for these things. There isn\u2019t.

That isn\u2019t just a fact of living with Down syndrome. That\u2019s true of everyone. Some people are born prematurely, others show up late. Some babies are born with a full head of hair. Maybe your daughter was speaking early. Maybe your son went through puberty late.

My nephew has been going to various forms of therapy for about a year now to facilitate his development. He\u2019s pretty close to walking. It could perhaps happen relatively soon. Speech therapy is a little more complicated. He says words every now and again. Maybe it\u2019s my ego, but I could swear he said \u201cUncle\u201d a few months ago. Just the one time though. He hates to repeat himself.

But we do know that he\u2019s attempting to communicate. We know he understands and is trying to tell us what he\u2019s thinking. It isn\u2019t that he\u2019s not getting it. From his perspective, it\u2019s us who aren\u2019t getting it. And you can sometimes see his frustration. We aren\u2019t the only ones with that sense of anticipation. He\u2019s waiting for the day when we will understand him.

When is a question that gets asked quite often. It isn\u2019t a good question.

It\u2019s important not to focus on when it happens. We need to appreciate his life as it’s happening. Waiting for something to happen is wasting the opportunities in front of us.

When he starts walking, he won\u2019t want us to hold him anymore. When he starts reading, he won\u2019t want me to read to him. And sure, there will be other things to share with him. But right now, we get to have him as he is right now. That\u2019s really special.

We just have to be patient enough to appreciate it.
<\/p>\n\n\n\n

\"\"<\/figure>\n\n\n\n

Patience was written by Adam, Remy’s uncle.<\/p>\n","protected":false},"excerpt":{"rendered":"

When a couple finds out they\u2019re having a baby, people have a tendency to imagine their child\u2019s whole life. You imagine him taking his first steps, saying his first words, what sport he\u2019ll play, what college he\u2019ll go to. And so on and so on. Then when you find out the baby\u2019s sex, you may…<\/p>\n","protected":false},"author":6721,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-141691","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"_links":{"self":[{"href":"https:\/\/gigisplayhouse.org\/neworleans\/wp-json\/wp\/v2\/posts\/141691","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/gigisplayhouse.org\/neworleans\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/gigisplayhouse.org\/neworleans\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/gigisplayhouse.org\/neworleans\/wp-json\/wp\/v2\/users\/6721"}],"replies":[{"embeddable":true,"href":"https:\/\/gigisplayhouse.org\/neworleans\/wp-json\/wp\/v2\/comments?post=141691"}],"version-history":[{"count":0,"href":"https:\/\/gigisplayhouse.org\/neworleans\/wp-json\/wp\/v2\/posts\/141691\/revisions"}],"wp:attachment":[{"href":"https:\/\/gigisplayhouse.org\/neworleans\/wp-json\/wp\/v2\/media?parent=141691"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/gigisplayhouse.org\/neworleans\/wp-json\/wp\/v2\/categories?post=141691"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/gigisplayhouse.org\/neworleans\/wp-json\/wp\/v2\/tags?post=141691"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}