{"id":134000,"date":"2022-02-08T12:08:29","date_gmt":"2022-02-08T18:08:29","guid":{"rendered":"https:\/\/gigisplayhouse.org\/madison\/?p=134000"},"modified":"2022-02-08T12:12:09","modified_gmt":"2022-02-08T18:12:09","slug":"hearts-full-of-love-congenital-heart-awareness-week","status":"publish","type":"post","link":"https:\/\/gigisplayhouse.org\/madison\/hearts-full-of-love-congenital-heart-awareness-week\/","title":{"rendered":"Hearts full of Love- Congenital Heart Awareness Week"},"content":{"rendered":"

\"\"<\/a><\/p>\n

Guest Blog post by Allie Backus<\/strong><\/p>\n

February 7th marks the start of Congenital Heart Awareness Week.<\/strong><\/h2>\n

 <\/p>\n

Did you know that 1 in every 100 babies born each year will have congenital heart disease? According to Children\u2019s Health, a baby born with Down syndrome, has a 50% chance of having a heart defect and a 25% chance that they will need an operation. Norah was one of these babies.<\/p>\n

 <\/p>\n

We found out that Norah had a heart defect, Tetralogy of Fallot, when I was 20 weeks pregnant. There is a reason that they call these babies heart warriors.<\/p>\n

Along the way, there were little obstacles that we would celebrate because we knew that her heart was not functioning the way should.<\/p>\n

For us, it meant:<\/p>\n

    \n
  • Celebrating each day it was still beating<\/li>\n
  • Celebrating not receiving any negative news during an ultrasound<\/li>\n
  • Celebrating that I did not need an emergency c-section because her heart was able to handle labor unlike previously thought<\/li>\n
  • Celebrating that she was not blue when she was born and that her NICU stay was not as long as predicted<\/li>\n
  • The biggest celebration came after the hardest day of our lives – repair day. After a long day of hoping and waiting, we celebrated knowing that Norah\u2019s life saving surgery worked.<\/li>\n<\/ul>\n

     <\/p>\n

    This week I encourage you to do one of the following to join us in celebrating:<\/p>\n

     <\/p>\n

    \u2764\ufe0f\u00a0Wearing red is an easy way to show support for those affected by CHD<\/p>\n

     <\/p>\n

    \u2764\ufe0f\u00a0Educate yourself more on the topic, it affects more people than you may be aware of<\/p>\n

     <\/p>\n

    \u2764\ufe0f\u00a0Donate! Some great places to look into\u00a0\u00a0are The American Heart Association and The Children\u2019s Heart Foundation<\/p>\n

     <\/p>\n

    \u2764\ufe0f\u00a0Reflect. Reflect on the beauty in each day, and celebrate those hearts that are still beating<\/p>\n

     <\/p>\n","protected":false},"excerpt":{"rendered":"

    Guest Blog post by Allie Backus February 7th marks the start of Congenital Heart Awareness Week.   Did you know that 1 in every 100 babies born each year will have congenital heart disease? According to Children\u2019s Health, a baby born with Down syndrome, has a 50% chance of having a heart defect and a…<\/p>\n","protected":false},"author":242,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1537,1487,1489],"tags":[23,336,1521,22],"class_list":["post-134000","post","type-post","status-publish","format-standard","hentry","category-advocacy","category-down-syndrome","category-gigis-playhouse","tag-down-syndrome","tag-gigisplayhouse","tag-healthy-living","tag-madison"],"_links":{"self":[{"href":"https:\/\/gigisplayhouse.org\/madison\/wp-json\/wp\/v2\/posts\/134000","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/gigisplayhouse.org\/madison\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/gigisplayhouse.org\/madison\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/gigisplayhouse.org\/madison\/wp-json\/wp\/v2\/users\/242"}],"replies":[{"embeddable":true,"href":"https:\/\/gigisplayhouse.org\/madison\/wp-json\/wp\/v2\/comments?post=134000"}],"version-history":[{"count":0,"href":"https:\/\/gigisplayhouse.org\/madison\/wp-json\/wp\/v2\/posts\/134000\/revisions"}],"wp:attachment":[{"href":"https:\/\/gigisplayhouse.org\/madison\/wp-json\/wp\/v2\/media?parent=134000"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/gigisplayhouse.org\/madison\/wp-json\/wp\/v2\/categories?post=134000"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/gigisplayhouse.org\/madison\/wp-json\/wp\/v2\/tags?post=134000"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}