{"id":133873,"date":"2021-11-22T15:59:28","date_gmt":"2021-11-22T21:59:28","guid":{"rendered":"https:\/\/gigisplayhouse.org\/madison\/?p=133873"},"modified":"2024-09-09T08:32:11","modified_gmt":"2024-09-09T13:32:11","slug":"mothers-perspective-honest-discussion-about-parenting","status":"publish","type":"post","link":"https:\/\/gigisplayhouse.org\/madison\/mothers-perspective-honest-discussion-about-parenting\/","title":{"rendered":"A Mother&#8217;s Perspective- An honest discussion about parenting a differently abled child"},"content":{"rendered":"<div class=\"kvgmc6g5 cxmmr5t8 oygrvhab hcukyx3x c1et5uql ii04i59q\">\n<div dir=\"auto\"><a href=\"https:\/\/gigisplayhouse.org\/madison\/files\/2021\/11\/Noah-4.jpg\"><img decoding=\"async\" class=\"alignnone wp-image-133877\" src=\"https:\/\/gigisplayhouse.org\/madison\/files\/2021\/11\/Noah-4-300x226.jpg\" alt=\"\" width=\"237\" height=\"179\" srcset=\"https:\/\/gigisplayhouse.org\/madison\/files\/2021\/11\/Noah-4-300x226.jpg 300w, https:\/\/gigisplayhouse.org\/madison\/files\/2021\/11\/Noah-4.jpg 600w\" sizes=\"(max-width: 237px) 100vw, 237px\" \/><\/a><\/div>\n<div dir=\"auto\"><\/div>\n<div dir=\"auto\">One of our Playhouse moms, Jennifer, recently wrote this social media post and we thought it&#8217;s an important perspective for everyone to hear about.<\/div>\n<\/div>\n<div dir=\"auto\"><\/div>\n<div dir=\"auto\"><strong>Guest Blog by Jennifer:\u00a0<\/strong><\/div>\n<div dir=\"auto\">\n<p>&nbsp;<\/p>\n<p>Vulnerability alert (and a long post)<\/p>\n<p>&nbsp;<\/p>\n<p>Being the mom of a differently abled child is exhausting at times. I don\u2019t mean physically exhausting (although there\u2019s definitely that), it\u2019s emotionally exhausting at times.<\/p>\n<p>There are the things that you mentally prepare for, an IEP meeting, an appointment with a specialist, the heartbreak of losing another cherished caregiver. You rally, you research, you plan for a favorite beverage, you talk to other parents, do your research, and sometimes plan a little transition or celebratory dinner or treat as a reward for the tough things.<\/p>\n<\/div>\n<div dir=\"auto\"><\/div>\n<div class=\"o9v6fnle cxmmr5t8 oygrvhab hcukyx3x c1et5uql ii04i59q\">\n<div dir=\"auto\"><\/div>\n<div dir=\"auto\"><a href=\"https:\/\/gigisplayhouse.org\/madison\/files\/2021\/11\/Noah-3.jpg\"><img decoding=\"async\" class=\"alignnone wp-image-133876\" src=\"https:\/\/gigisplayhouse.org\/madison\/files\/2021\/11\/Noah-3-300x226.jpg\" alt=\"\" width=\"219\" height=\"165\" srcset=\"https:\/\/gigisplayhouse.org\/madison\/files\/2021\/11\/Noah-3-300x226.jpg 300w, https:\/\/gigisplayhouse.org\/madison\/files\/2021\/11\/Noah-3.jpg 600w\" sizes=\"(max-width: 219px) 100vw, 219px\" \/><\/a><\/div>\n<div dir=\"auto\"><\/div>\n<\/div>\n<div dir=\"auto\">\n<h2>I am in the middle of a review\/revise IEP that is 47 pages long. I\u2019ve reviewed it but am pausing before I send my final comments.<\/h2>\n<p>I am also in the middle of finding new providers for Noah as he is aging out of Caravel in less than 30 days. That has been quite a challenge.<\/p>\n<p>&nbsp;<\/p>\n<ul>\n<li>Provider A doesn\u2019t take xyz funding source<\/li>\n<li>Provider B doesn\u2019t start until age 16<\/li>\n<li>Provider six trillion (option z) has a long wait list\u2026..<\/li>\n<\/ul>\n<p>hours and hours of emails and phone calls\u2026\u2026. all striking out.<\/p>\n<p>Thankfully, I think we may have found something that will work and I\u2019m confident that the chips will land in all the right places for Noah. Still a lot of moving pieces though.<\/p>\n<p><a href=\"https:\/\/gigisplayhouse.org\/madison\/files\/2021\/11\/Noah-2.jpg\"><img decoding=\"async\" class=\"alignnone wp-image-133875\" src=\"https:\/\/gigisplayhouse.org\/madison\/files\/2021\/11\/Noah-2-300x225.jpg\" alt=\"\" width=\"231\" height=\"173\" srcset=\"https:\/\/gigisplayhouse.org\/madison\/files\/2021\/11\/Noah-2-300x225.jpg 300w, https:\/\/gigisplayhouse.org\/madison\/files\/2021\/11\/Noah-2.jpg 600w\" sizes=\"(max-width: 231px) 100vw, 231px\" \/><\/a><\/p>\n<p>Then there are the out of nowhere, unexpected phone calls that you weren\u2019t prepared for\u2026&#8230; A call from someone who has likely never even met your son, or understands the nature of the request made on behalf of your son. A call that quickly and coldly tells you your son cannot participate in a much desired extra curricular activity. A call that takes you so by surprise that even though you know the name of the caller, you ask the caller to state their name at the end of the call so you can write it down because now you are eclipsed in a fog of emotions.<\/p>\n<p>Yeah that happened at 2:44 today, in the middle of my workday, when I least expected it. I cried, called my mom, texted some trusted Holland mamas and then sent the organization an email letting them know I was hurt and disappointed and asked for help in exploring different options.<\/p>\n<\/div>\n<div dir=\"auto\"><\/div>\n<div dir=\"auto\"><\/div>\n<div dir=\"auto\"><\/div>\n<div class=\"o9v6fnle cxmmr5t8 oygrvhab hcukyx3x c1et5uql ii04i59q\">\n<div dir=\"auto\">I am thankful that, emotionally, I pivoted quickly. But these are the lingering thoughts that remain\u2026\u2026<\/div>\n<ul>\n<li>This isn\u2019t right!<\/li>\n<li>Why is everything always a fight?<\/li>\n<li>When will our society get it?<\/li>\n<\/ul>\n<div dir=\"auto\"><strong>And, my sweet boy, all I want for him is to be included.<\/strong><\/div>\n<h2>&#8220;I wouldn\u2019t change you my sweet boy for the world but I will advocate until my dying breath to change the world for you!&#8221;<\/h2>\n<\/div>\n<div class=\"o9v6fnle cxmmr5t8 oygrvhab hcukyx3x c1et5uql ii04i59q\">\n<div dir=\"auto\">Noah Ray, I have said it before, you, my precious first born son are worth every tear, every text, every phone call, every minute spent reading and researching. I wouldn\u2019t change you my sweet boy for the world but I will advocate until my dying breath to change the world for you!<\/div>\n<\/div>\n<div dir=\"auto\"><a href=\"https:\/\/gigisplayhouse.org\/madison\/files\/2021\/11\/Noah-5.jpg\"><img decoding=\"async\" class=\"alignnone size-medium wp-image-133878\" src=\"https:\/\/gigisplayhouse.org\/madison\/files\/2021\/11\/Noah-5-300x225.jpg\" alt=\"\" width=\"300\" height=\"225\" srcset=\"https:\/\/gigisplayhouse.org\/madison\/files\/2021\/11\/Noah-5-300x225.jpg 300w, https:\/\/gigisplayhouse.org\/madison\/files\/2021\/11\/Noah-5-1024x769.jpg 1024w, https:\/\/gigisplayhouse.org\/madison\/files\/2021\/11\/Noah-5-768x577.jpg 768w, https:\/\/gigisplayhouse.org\/madison\/files\/2021\/11\/Noah-5-1536x1154.jpg 1536w, https:\/\/gigisplayhouse.org\/madison\/files\/2021\/11\/Noah-5.jpg 2048w\" sizes=\"(max-width: 300px) 100vw, 300px\" \/><\/a><\/div>\n","protected":false},"excerpt":{"rendered":"<p>One of our Playhouse moms, Jennifer, recently wrote this social media post and we thought it&#8217;s an important perspective for everyone to hear about. Guest Blog by Jennifer:\u00a0 &nbsp; Vulnerability alert (and a long post) &nbsp; Being the mom of a differently abled child is exhausting at times. I don\u2019t mean physically exhausting (although there\u2019s&hellip;<\/p>\n","protected":false},"author":242,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"wpo365_audiences":[],"wpo365_private":false,"footnotes":""},"categories":[1486,1537,1487,1489,1499,1485],"tags":[1512,1295,905,23,1195,1524,1519,336,22,1039],"class_list":["post-133873","post","type-post","status-publish","format-standard","hentry","category-autism","category-advocacy","category-down-syndrome","category-gigis-playhouse","category-self-advocacy","category-sensory","tag-acceptance","tag-children","tag-community","tag-down-syndrome","tag-downsyndrome","tag-family","tag-friends","tag-gigisplayhouse","tag-madison","tag-nonprofit"],"_links":{"self":[{"href":"https:\/\/gigisplayhouse.org\/madison\/wp-json\/wp\/v2\/posts\/133873","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/gigisplayhouse.org\/madison\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/gigisplayhouse.org\/madison\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/gigisplayhouse.org\/madison\/wp-json\/wp\/v2\/users\/242"}],"replies":[{"embeddable":true,"href":"https:\/\/gigisplayhouse.org\/madison\/wp-json\/wp\/v2\/comments?post=133873"}],"version-history":[{"count":0,"href":"https:\/\/gigisplayhouse.org\/madison\/wp-json\/wp\/v2\/posts\/133873\/revisions"}],"wp:attachment":[{"href":"https:\/\/gigisplayhouse.org\/madison\/wp-json\/wp\/v2\/media?parent=133873"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/gigisplayhouse.org\/madison\/wp-json\/wp\/v2\/categories?post=133873"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/gigisplayhouse.org\/madison\/wp-json\/wp\/v2\/tags?post=133873"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}