{"id":673,"date":"2016-04-25T22:44:15","date_gmt":"2016-04-26T02:44:15","guid":{"rendered":"https:\/\/gigisplayhouse.org\/indianapolis\/?p=673"},"modified":"2024-10-11T16:52:24","modified_gmt":"2024-10-11T20:52:24","slug":"ds-connect-syndrome-registry","status":"publish","type":"post","link":"https:\/\/gigisplayhouse.org\/indianapolis\/ds-connect-syndrome-registry\/","title":{"rendered":"DS-Connect\u00ae: The Down Syndrome Registry"},"content":{"rendered":"<p>Is your family member with Down syndrome registered with DS-Connect\u00ae?<\/p>\n<p><strong>DS-Connect\u00ae: The Down Syndrome Registry<\/strong> is a voluntary and\u00a0confidential\u00a0registry, launched by the National Institutes of Health, \u00a0that collects basic information\u00a0on individuals\u00a0with Down syndrome.<\/p>\n<p>According to the DS-Connect website, this online registry\u00a0helps\u00a0individuals with Down syndrome and their families to:<\/p>\n<ul>\n<li>Connect with researchers and health care providers.<\/li>\n<li>Express interest in participating in certain clinical studies on Down syndrome, including studies of new medications and other treatments.<\/li>\n<li>Take confidential health-related surveys. These surveys are aimed at better understanding the health of people with Down syndrome across their lifespans.<\/li>\n<\/ul>\n<p>Join DS-Connect\u00ae by going to <a href=\"https:\/\/dsconnect.nih.gov\/\" target=\"_blank\" rel=\"noopener\">https:\/\/DSConnect.nih.gov<\/a> and click \u201cJoin the registry\u201d.\u00a0Create an account, complete the consent form, and\u00a0provide information and complete a variety of surveys\u00a0on the individual with Down syndrome.<\/p>\n<p>Your participation is greatly appreciated!<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Is your family member with Down syndrome registered with DS-Connect\u00ae? DS-Connect\u00ae: The Down Syndrome Registry is a voluntary and\u00a0confidential\u00a0registry, launched by the National Institutes of Health, \u00a0that collects basic information\u00a0on individuals\u00a0with Down syndrome. According to the DS-Connect website, this online registry\u00a0helps\u00a0individuals with Down syndrome and their families to: Connect with researchers and health care providers.&hellip;<\/p>\n","protected":false},"author":67,"featured_media":142013,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[15,35,36,34],"class_list":["post-673","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized","tag-down-syndrome","tag-ds-connect","tag-registry","tag-research"],"_links":{"self":[{"href":"https:\/\/gigisplayhouse.org\/indianapolis\/wp-json\/wp\/v2\/posts\/673","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/gigisplayhouse.org\/indianapolis\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/gigisplayhouse.org\/indianapolis\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/gigisplayhouse.org\/indianapolis\/wp-json\/wp\/v2\/users\/67"}],"replies":[{"embeddable":true,"href":"https:\/\/gigisplayhouse.org\/indianapolis\/wp-json\/wp\/v2\/comments?post=673"}],"version-history":[{"count":0,"href":"https:\/\/gigisplayhouse.org\/indianapolis\/wp-json\/wp\/v2\/posts\/673\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/gigisplayhouse.org\/indianapolis\/wp-json\/wp\/v2\/media\/142013"}],"wp:attachment":[{"href":"https:\/\/gigisplayhouse.org\/indianapolis\/wp-json\/wp\/v2\/media?parent=673"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/gigisplayhouse.org\/indianapolis\/wp-json\/wp\/v2\/categories?post=673"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/gigisplayhouse.org\/indianapolis\/wp-json\/wp\/v2\/tags?post=673"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}