Home  |  Blog  |  Store  |  Contact Us 

Why is this a big deal?

GiGi will be singing the National Anthem at the Chicago Cubs game on June 25th! Just take a moment to think about that! She will be giving hope to so many people who have watched their loved ones struggle to say just one word let alone sing the entire National Anthem!

So GiGi’s Playhouse will be representing big time at Wrigley Field next Tuesday night! We’ll be in skyboxes, in the 1914 Club, on the field, and all over The Friendly Confines to witness this special moment. There are bars hosting viewing parties where they’ll watch GiGi sing via Facebook Live. Our Playhouses across the country are doing the same thing! What an incredible gift and inspiration that GiGi will be giving to so many! But this didn’t happen overnight. Please read this short blog post to truly understand how incredible this feat is.

 

Hello All!

After the opening of our 46th GiGi’s location in Little Rock on Saturday and then flying home to host 2500 people at our GiGi’s 5k Fun Run on Sunday morning and then going straight to summer school and work all week, GiGi and I were ready for a little down time! Having that time got me really excited, and maybe a bit nervous, about GiGi singing the National Anthem at the Cubs game on June 25th! This is SO BIG! Standing in front of 40,000 people is

hard enough but in actuality, that is the easy part for her and I witnessed that so clearly last weekend.

As GiGi was excitedly telling a story on Fathers Day, I noticed her trying so desperately to articulate the words as fast as her brain was sending them to her mouth. At that moment I could not help but take pause and watch her in awe. Upon noticing she was stumbling on the words she stopped herself and went “ugh blahh” and laughed several times. In a sense making fun of herself and in another sense buying herself the time she needed to coordinate all her muscles to say all the words she so desperately wanted to say. I was so proud of her, and also a little sad that it was so hard for her, but as usual it was nothing she couldn’t overcome and she had us all laughing with her story that she eventually perfectly articulated!

That is why I wanted to take a quick minute to explain why GiGi singing the National Anthem at the Chicago Cubs game is so important to me and especially to GiGi. As a little girl, she always LOVED the national anthem. She quickly memorized the lyrics but it has taken her YEARS to be able to properly articulate the words. I mean she is still working on it to this day!

Many children with Down syndrome have difficulty with the strength, timing, and coordination of muscle movements for speech due to hypotonia (low muscle tone). It takes an average of 70 muscles to speak/sing just ONE word! Now imagine that in an entire song like our National Anthem! Talk about hard work!

Speech and singing involve coordinating breathing (respiration), voice (phonation), and the production of speech sounds (articulation). Therefore, GiGi has specifically had to work on increasing the efficiency of her respiratory system (taking enough breath on inhalation to support her speaking on her exhalation), monitoring herself and using her sensory feedback system to know when she needs an additional breath (so she doesn’t run out/feel out of breath).

She’s also worked on increasing her articulation with specific sounds, such as /f/ and /s/ and /z/. Due to low oral facial muscle tone, increasing her jaw stability through endurance and placement therapy has been provided for /s/ and /z/. As her jaw has increased stability, her tongue has achieved a more retracted posture as opposed to being in between her teeth/forward resting posture resulting in distorted sound quality. For the /f/ sound, she’s had to focus on her lip placement and the muscle in the lower chin to increase the placement to produce (which requires the bottom lip to remain in between the teeth) and pushing air through at the same time.

As you can see, she has to focus on MANY things (lip placement, tongue placement, jaw placement, efficiently using inhalation and singing ONLY on exhalation, when to pause and breath) for each individual word…. In a 2 minute song! That’s a lot to wrap one’s head around.

This is not just about a 16-year-old girl with Down syndrome singing the national anthem in front of 40,000 people. It is about GiGi, at 16 years old, overcoming overwhelming obstacles and reaching her goals! Her dream was to sing the national anthem at the Cubs game and now she is doing it with confidence, dignity, and grace. She will be an inspiration to all who see her and truly understand everything she had to overcome to make it to this day!

The next time you so easily make an “F” sound or an “S” sound (keep it clean people!) I want you to think about how naturally it comes to you and how much it takes for her to do that. I hope then that you too are in awe of her and all of her friends. They do amazing things and overcome insurmountable obstacles every day, that no one even know exist.

As I think you know we are working with Microsoft on how to best utilize Artificial Intelligence to help individuals with Down syndrome and speech is one of our areas of focus! Can you imagine how life changing that will be?? Maybe someday being able to articulate the National Anthem will not take years to achieve but just days or hours or minutes just like the rest of us! #changingtheworld

Thank you, Taylor, (GiGi’s Playhouse Hoffman Estates, Speech Therapist) for helping me explain all of this and helping GiGi be her #bestofall! Thank you, Kathleen Wilson, for being GiGi’s voice coach. She has worked with her for years to help her learn to maintain her pitch and her breath while using proper diction. This is no easy task but she did it!

 

We are so grateful that GiGi’s BFF Tom Ricketts and the Cubs recognize all that it takes for GiGi to actually sing and articulate the National Anthem for them. This is no easy feat but the Cubs do not shy away from a challenge! They trusted she would be ready and she is! Thank you for believing! I promise she will make you proud.

 

Thank you  John Vincent, Cubs Anthem singer, for stopping by GiGi’s Playhouse to share your encouragement and tips with GiGi! #GenerationG

 

 

9 Comments

  1. Benny kaufman on June 20, 2019 at 12:41 pm

    GO GIGI! GiGi’s Playhouse NYC is so proud to see you achieve one of your dreams. We know how hard you have worked at your singing. What an accomplishment!

  2. Julie Waltz on June 20, 2019 at 9:59 pm

    This is so exciting! Yay Gigi!!!! 💜

  3. Richard Reilly on June 21, 2019 at 10:19 am

    A few years ago I sat in on a Literacy Session with GiGi and her tutor at the original Hoffman Estates Playhouse. Her response was impressive and, in part, she wanted me to know that she knew. On Tuesday night GiGi will represent to the world in a new maturity a truth – not just what she has accomplished but also, that given the opportunity, people with disability will excel! GiGi, proud Mom and Dad, we stand tall beside you! Big Love! Richard Reilly – The Grandparent Connection.

  4. Michael Turgeon on June 23, 2019 at 9:40 pm

    Go get ’em GiGi !
    As a member of the Schaumburg/Hoffman Estates Rotary Club; I have been to the original GiGi’s numerous times.
    No matter if I have had a good or bad day, or have traveled the world; I am always amazed and proud of what I witness
    there …. every time.
    I. as well as numerous club members will be holding our hands over our hearts and feeling pride for our country
    and GiGI.

  5. Alison Bell on June 25, 2019 at 11:51 am

    I really appreciate this article and am excited to see Gigi’s accomplishment! My youngest daughter , Nicole , Has DS and is 19 and sings, too. Her older sister is a professional musician–singer and composer, and has helped her greatly. Nicole loves to sing the Anthem as well. She does an amazing job, and is not intimidated by large crowds (like her Mom would be!). How would I go about getting her a chance to do something like this? She really sings on pitch and enunciates well.

    • Annette McGovern on June 25, 2019 at 10:03 pm

      Allison Bell, did you watch the cub’s game? they only showed GiGi signing 2 lines around the 8th inning.

  6. Vickie Youngblood on June 25, 2019 at 2:50 pm

    This is so wonderful! I hope we can see it on TV tonight!

    We have to do more to help our young people make these connections!
    We need to get more and more of them in the “spotlight” or in the public eye so
    that sooner (than later) no one will think a thing about it!

  7. Annette McGovern on June 25, 2019 at 10:01 pm

    I hope someone reads this. We started recording the Cubs game at 6:30, wanted to see GiGi sing before the game. It didn’t happen. The only thing we saw was Gigi singing 2 lines after the 8th inning. Shame on the cubs. If you want to have a platform for DS, make the cubs make it happen for GiGi!

    • Heather Rodriguez on June 26, 2019 at 9:04 am

      Hello Annette, thank you for helping us celebrate this incredible event. The Cubs have been the very best of friends to GiGi’s Playhouse for years, they gave us this amazing opportunity, celebrated with us on social media and Tom Ricketts himself was waiting in the wings to congratulate GiGi. I hope you have seen all the amazing news coverage, people all over the world are celebrating. It is not common practice for the TV networks to televise the signing of the national anthem so this was not out of the ordinary. Check out this great story & let’s keep celebrating this amazing accomplishment! https://abc7chicago.com/sports/hoffman-estates-teen-with-down-syndrome-sings-national-anthem-at-wrigley-field/5364703/

      Please feel free to get in touch with me if you have any questions. Heather Rodriguez, hrodriguez@gigisplayhouse.org

Leave a Comment





Translate »