When my daughter GiGi was born, I thought my family’s life would change forever. About an hour after she was born, the doctors suspected she had Down syndrome. Panic was welling up inside me but I was afraid for anyone to see it. As soon as my husband and I made eye contact I said, “if anyone can handle this we can.” He agreed and said “Can you imagine what better kids Isabella and Franco are going to be because of her?” I knew we were going to get through this together.Don’t get me wrong – we were petrified! I can not even begin to tell you the total fear and devastation I felt. Everything they were telling us about Down syndrome was so negative! Suddenly no one had eye contact with me anymore, they kept the door to my room closed and they kept sending in the clergy! If this was happening to us already what was life going to be like for our kids?I was so afraid to bring her home and start this “new” life. I remember when people first came to visit. There were hugs of sympathy not congratulations. They would tip toe towards the bassinet and seemed afraid to look inside to see what she would look like. Then when they finally mustered up the courage to look they saw this beautiful little baby and they were shocked! They always exclaimed “Oh my gosh! She is adorable!” I really don’t know what they were expecting to see but finally people started to realize she was just a baby.
Life with GiGi
Once we got settled and got back into a routine at home I realized that she was more like my other kids than she was different. Some things took her longer but she always got it and she never gave up. She inspired me everyday and I promised her I would make the world a more accepting place for her and those with Down syndrome. I remember my first support group meeting – we were in the corner of a sterile room at the hospital. I just kept thinking, ‘why isn’t there a place for us’? That is what propelled me to create a place where families could come for resources and networking, where kids and adults with Down syndrome could be the leaders, where we could celebrate our diagnosis. With my husband by my side we went out to recruit board members and raise money. My son Franco, drew the GiGi’s Playhouse logo and in just 5 months we opened the doors to the first Down syndrome awareness center in the country!
The Playhouse
My favorite part of the Playhouse is the self esteem that the kids gain. As one Board member states, “My son has gained so much self confidence from being at GiGi’s. At the Playhouse, he is the leader – the other kids follow him! He is beginning to transfer this new found self confidence to his class at school.” There are over 20 different educational activities and programs designed specifically to work on important skills for each child. Many of the programs are facilitated and developed by therapists and educators. Thus the kids are strengthening their gross and fine motor skills, speech and language development, and social skills – and having so much fun they don’t even realize it! All of the skills are built in a way that they can be transferred into the classrooms. They learn how to socialize with peers, how to read and write, how to take turns and most of all they are gaining self esteem at the same time!
The Future
I have to say having GiGi was like a true love story. It started out with devastation and fear and ended with a love like I have never known. Without living it I would never have understood that. I am just glad that GiGi’s Playhouse has turned into a place where they can see the other side of Down syndrome. The limitations that are presented in books, online and even from the medical profession are outdated. They told me that GiGi would be hard to potty train (what child isn’t?) yet she was trained the same time as my other kids. The more they say she won’t do the more she steps up to the plate! She works so hard everyday without a complaint so how can I not do the same for her!
She is learning to read a book a week at the literacy program. She is spending the summer playing t-ball, boating, wave running, swimming, singing Hannah Montana, listening to her brothers ipod, dancing, reading and playing with her friends. And of course, she loves playing with her friends at GiGi’s Playhouse.
She continually inspires me to do thing I never thought I could do and I thank God for her every day!